Comments on: the look /2014/10/the-look/ Mon, 30 Nov 2020 18:56:29 +0000 hourly 1 https://wordpress.org/?v=4.9.1 By: Alie /2014/10/the-look/#comment-50406 Tue, 14 Oct 2014 16:30:35 +0000 /?p=4993#comment-50406 Sending so much love back to you, Noelle. Perspective is everything, and some days when I’m strong I think to myself how sad it is that Owen’s light can’t be shared with everyone. I bet you feel the same with your sweet little girl. But honestly, most days when we go out in public I’m just downright scared of the stares and subtle comments. My heart crumbles when someone actually talks to us about where he “seems to be looking” (or not looking).

And his eyes WILL get better, but by how much we don’t know yet…but right now it’s heartbreaking. Thanks for sharing, Noelle.

]]> By: Noelle /2014/10/the-look/#comment-50167 Tue, 14 Oct 2014 01:06:17 +0000 /?p=4993#comment-50167 My daughter is 3. She has a chromosome deletion that caused a serious heart defect among other things. She is 100% feeding tube fed and doesn’t talk – at all.

Every single day someone says something about the fact that she didn’t say hi back to them or they look at strangely or with pity when I feed her in public.

My heart is permanently broken because of the challenges she came with. When it’s just her and her daddy and me in okay and can feel peace.

But the minute we are in public and someone says something I feel that heartache all over again.

This is just to say I understand and I’m sending a big hug your way.

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