Comments on: who you are

By: Alie

Alie — Thu, 22 Jan 2015 00:14:06 +0000

Thank you, Nadine! That means a lot to me. I think I heard about your family from the Odells. :)

By: Nadine Bird

Nadine Bird — Wed, 21 Jan 2015 23:52:03 +0000

Hi –

I’m amazed at how much we have in common. As you know, we also had a baby who was Anacephalic and our son Ryan has Ocular Albanism..if you ever want to talk, give me a call.
Nadine

By: renee dambach

renee dambach — Sun, 14 Sep 2014 21:25:38 +0000

My prayers and love are with you and your beautiful family.

By: kim

kim — Sun, 14 Sep 2014 16:04:43 +0000

Sorry – I meant “some can” even see up to 20/40, I think the way I worded implies differently. I just wanted you know to that there really is a hope – not just as percentages that doctors give but in actual people that he’s seen.

By: Kim

Kim — Sat, 13 Sep 2014 16:47:44 +0000

Alie – as an eye doctor, Cameron has met quite a few people with albinism. As I was telling him he said, “he’ll probably have nystagmus” (I said he does) “and he’ll likely have to wear sunglasses most of the time.” He says most of them that he has met can drive and can even see up to 20/40. If you’d like to talk to him he’d be happy to.

Love and prayers for him and you.

By: Meagan

Meagan — Sat, 13 Sep 2014 05:38:12 +0000

Oh Alie,

I love you and your little family so much and I’m so sorry that I can’t make everything better for you and Owen. I admire your faith and your willingness to move forward despite everything that life has brought you. We will continuer our prayers for you all. Love from San Jose.

By: Jordan

Jordan — Fri, 12 Sep 2014 23:55:47 +0000

My heart is so full for you and your sweet family. I live you guys and am sending you big hugs.

You put your thoughts into words so well Alie. I am so impressed with the faith you have during these trials of faith. Love you.

Jordan