/2012/09/part-four/ Mon, 30 Nov 2020 18:56:29 +0000 hourly 1 https://wordpress.org/?v=4.9.1 /2012/09/part-four/#comment-3678 Sun, 21 Oct 2012 20:41:05 +0000 http://blog.doublejones.com/?p=2641#comment-3678 Katie, my heart is breaking for you. This is not an easy thing to go through! Please, please email me with any questions you have (alie.jonesy@gmail.com). Even if you feel it’s too personal, I would love to help you. I think it’s really neat you are looking into organ donation. If that becomes too complicated/isn’t working out, you can always donate your baby’s heart valves (tissues) after his/her death. Remember there is a purpose to this experience, even if you don’t realize it yet. If you allow it to, this baby will truly change your life in the best way possible.

]]> /2012/09/part-four/#comment-3677 Sun, 21 Oct 2012 06:36:54 +0000 http://blog.doublejones.com/?p=2641#comment-3677 I can’t begin to tell you how much I appreciate the fact that you were able to share Amelia’s story. We just received our diagnosis of anencephaly less than two weeks ago and are still coping with that initial devastation. I have to confess that this part of your story touched me because I have had fearful thoughts of “What if he/she lives longer than just the few minutes or hours expected? How do we handle that?” Thank you from the bottom of my heart for sharing her story.

]]> /2012/09/part-four/#comment-3641 Wed, 10 Oct 2012 18:26:56 +0000 http://blog.doublejones.com/?p=2641#comment-3641 […] Part 4 […]

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